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Top: Health: Support_Groups: Conditions_and_Diseases: Facial_Differences:

See also:
  • AboutFace Zapisz - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
  • Acne Support Group in Cyberspace Zapisz - Support group and forum for anyone with acne to visit, discuss, share treatments, provide support and move through the stressful event of having acne.
  • Beneath the Surface Zapisz - Offers support and understanding to individuals with facial differences. Includes the founder's story and encourages others to share their experiences.
  • Birthmark Support Group Zapisz - UK-based charitable organization provides information about birthmarks, how to get help, treatment centres, newsletters, diary of events and links to other associated support groups.
  • Changing Faces Zapisz - UK charity that supports, represents and campaigns for people who have disfigurements of the face or body.
  • Children's Craniofacial Association Zapisz - Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
  • Crouzon Support Network Zapisz - Provides information and support for people affected by Crouzon Syndrome and related craniofacial anomalies. Includes FAQ, newsletter, events and online support.
  • FACES: The National Craniofacial Association Zapisz - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
  • Foundation for Faces of Children Zapisz - Expert information for families and health care professionals about craniofacial conditions.
  • Goldenhar Family Support Group Zapisz - Aims to support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems.
  • Headlines Zapisz - Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
  • Johns Hopkins Center for Craniofacial Development and Disorders Zapisz - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
  • Let's Face It USA Zapisz - A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
  • Moebius Syndrome Foundation Zapisz - Non-profit organisation that aims to provide information and support to individuals with Moebius syndrome and their families. Includes resources, news and articles and information on support groups, events and research.
  • Sincere Meditations Zapisz - Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
  • Support Works Online Zapisz - Resources to find or form support groups related to facial difference. Information on medical research.
  • TRPS Support Group UK Zapisz - Provides information and support to those with trichorhinophalangeal syndrome and their families. Includes information on the condition, patients’ stories and a forum.
  • The AmeriFace Circle of Smiles Zapisz - Webring community for families whose lives have been touched by cleft lip and palate and other craniofacial anomalies.
  • The Craniofacial Society of Great Britain and Ireland Zapisz - Information about the society, which is a multidisciplinary forum for specialists.
  • The DRM WebWatcher: Facial Differences Zapisz - A Disability Resources monthly guide to online resources about craniofacial differences.
  • The Facial Pain Association Zapisz - Aims to serve as an advocate for patients living with trigeminal neuralgia and related facial pain conditions by providing information, encouraging research and offering support.
  • The Personal Side of Craniofacial Differences Zapisz - Personal accounts of living with craniofacial conditions, and related webrings.
  • University of Michigan: Let's Face It Zapisz - Provides information and resources for those with facial differences, those who care for them and the general public. Includes a list of conditions and information on treatment and lifestyle.
  • XP Support Group Zapisz - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
  • Yayasan Senyum: The Smile Foundation Zapisz - Non-profit organization supporting the delivery of health care to people with craniofacial disabilities, in particular children with cleft lip and palate in Bali, Lombok, Java and other areas of Indonesia.